There’s no excuse for not updating this blog sooner. Most of you know I’m a procrastinator so it shouldn’t surprise you. The last time I updated the blog was when we Carley went home. Well she's been home for over a month now and Carley has settled into our home and has had her ups and downs.
We currently have one full time nurse, Jamie.
And we also have temporary nurses until they find some that will work full time. I think we may have another, Lacey who may work full time. I'll keep you updated on that. In the meantime, these wonderful temp. nurses are Sheila, Fawn and Asterid. Carley is eligible for about 21 hours of care a day, but we are lucky to use 10. The hardest is not having a full time night nurse. I don’t know how Kristal does it, but she stays up with her whenever we don’t have a nurse. This means she is up at least 5 out of the 7 nights and still manages to take care of things around the house, including everything associated with Emiley. You know what I’m talking about. I’ll tell you one thing, in case she doesn’t know it, and she’ll claim I never tell her, she has my respect and admiration. I couldn’t do what Kristal does and Carley and I really appreciate everything she does.
I’m going to post some pictures of her at home based on the date the picture was taken. The blog will appear to have been updated periodically and not a month late, and you may have to go to the second page in order to see a full month worth of updates (pictures).
As you can tell from the pictures, after she came home, she started out in a basinet. We upgraded her to Bailey and Emiley’s old crib and it really worked well. We know have a new hospital crib that takes less room.
As for San Antonio and the future, Carley has been accepted for the rib expansion surgery. However, this news is a double sided sword because the only reason they accepted her is they feel she doesn’t have much of a chance without the surgery. Plus, during surgery, the risk of losing Carley on the operating table is greater than normal. This isn’t the first time we’ve been faced with this type of decision. However, before we decide what to do, Carley has an appointment with an SED specialist in Delaware. This is the same specialist we had mentioned before. Her appointment is set for October 14, 5 days after her 1st birthday. I’m sure you’ll see plans to celebrate this milestone soon. I’ll keep you posted. That is all for now, and I’m really sorry to have waited so long.
I’m going to post some pictures of her at home based on the date the picture was taken. The blog will appear to have been updated periodically and not a month late, and you may have to go to the second page in order to see a full month worth of updates (pictures).
As you can tell from the pictures, after she came home, she started out in a basinet. We upgraded her to Bailey and Emiley’s old crib and it really worked well. We know have a new hospital crib that takes less room.
As for San Antonio and the future, Carley has been accepted for the rib expansion surgery. However, this news is a double sided sword because the only reason they accepted her is they feel she doesn’t have much of a chance without the surgery. Plus, during surgery, the risk of losing Carley on the operating table is greater than normal. This isn’t the first time we’ve been faced with this type of decision. However, before we decide what to do, Carley has an appointment with an SED specialist in Delaware. This is the same specialist we had mentioned before. Her appointment is set for October 14, 5 days after her 1st birthday. I’m sure you’ll see plans to celebrate this milestone soon. I’ll keep you posted. That is all for now, and I’m really sorry to have waited so long.
Latest picture:
Nicole visits Ms. Carley, September 2nd.
3 comments:
While we are so thrilled with her being home and happy with her family we continue to keep you all in our prayers. Carey is a fighter and I have no doubt that whatever you decide, she will continue to defy the odds!!!
Thanks for updating us guys we love you all and your in our daily prayers...Aunt Jamie and family
I am so glad to hear that things are going so well. Do you know when you plan to arrive in DE? I ask because Quinn is going to be having surgery on 10/6. They are planning to travel home on 10/13, so there is a chance that you may be able to cross paths. I am also trying to figure out if there is any way Sara and I can visit Quinn in DE after her surgery, so there is an outside shot we may be in DE then too! Are you seeing both Dr. Bober and Dr. MacKenzie? Any other appointments there? If you are seeking another pulmonary opinion, Dr. Chidekel is a pulmonologist that was tremendous help to us. So glad things are well and I am confident in my faith that Miss Carley will do great what ever you decide to do with respect to the surgery.
Denise and Sara
Post a Comment